The Story of JESSE
In 2009, Jesse Lucky was four years when he severely reacted to pencilin. He was burnt inside out. His whole body was covered with blisters and peeled off, he lost his hair, nails,he lost his sight and almost lost his life. In 2014 Jane Serumaga ,Jesse’s mother, created the JesseLuckyFoundation.
Steven-Johnson Syndrome
A rare but serious disorder that affects the skin, mucous membrane, genitals and eyes. The mucous membrane is the soft layer of tissue that lines the digestive system from the mouth to the anus, as well as the genital tract (reproductive organs) and eyeballs. A rare, serious disorder of the skin and mucous membranes. A medical emergency, this is often a reaction to medication or an infection. Flu-like symptoms appear first. A painful rash that spreads and blisters follows. Emergency treatment aims to eliminate the underlying cause and control symptoms and complications.
Just Diagnosed
Investigation of Steven Johnson Syndrome Doctors often can identify Stevens-Johnson syndrome based on your medical history, including a review of your current and recently stopped medications, and a physical exam. Skin biopsy. To confirm the diagnosis, and rule out other possible causes, your doctor removes a sample of skin for laboratory testing (biopsy).
Common Misconceptions
Acute Generalized Exanthematous Pustulosis (AGEP) is an uncommon yet severe skin reaction that is often confused with SJS/TEN. It is a drug reaction presenting with non-follicular, sterile pustules on an erythematous and edematous base.
Signs Of Steven-Johnson Syndrome
Symptoms of Stevens-Johnson syndrome include: -> Skin pain. ->Fever. ->Body aches. ->Red rash or red blotches on your skin. ->Cough. ->Blisters and sores on the skin and on mucus membranes of the mouth, throat, eyes, genitals and anus. ->Peeling skin. ->Drooling (because closing the mouth is painful). ....etc.
Causes Of Steven-Johnson Syndrome
Stevens-Johnson syndrome is usually caused by an unpredictable adverse reaction to certain medications. It can also sometimes be caused by an infection. The syndrome often begins with flu-like symptoms, followed by a red or purple rash that spreads and forms blisters. The affected skin eventually dies and peels off.
